Drew started laughing today. Drew’s Dad and I have suspected for several days that he is laughing while laying in front of his conversation mirror, but we weren’t quite sure. Well, Gamma and Uncle Ran-Ran confirmed that Drew was in fact laughing at some rather silly faces Uncle Ran-Ran was making today! It is the [...]
Filed under: Milestones | 1 Comment »
We were in Cincinnati today for another round of appointments and are now one step closer to having Drew receive his cochlear implants. Today’s appointments included a CI consult for Drew with Dr. Daniel Choo and follow up on the genetic testing results.
On the CI front, Drew is moving toward candidacy. Dr. Choo is confidant [...]
Filed under: Cochlear Implant, Genetic Testing, Hearing aids, Medical | 2 Comments »
I had thought that I would be able to have my genetic testing done through my OB/GYN’s office this week for the mitochondrial abnormality that was found in Drew. I thought when they told me their lab ran this test it was too good to be true, as it is a very rare abnormality. It [...]
Filed under: Genetic Testing, Medical | 4 Comments »
We have doing activities with Drew on a daily basis to stimulate communication and to see if he is able to detect even the loudest of sounds with his hearing aids. We are enrolled in a monthly parent education program through the Columbus Hearing Impaired Program that gives us specific activities that can help stimulate [...]
Filed under: Education, Hearing aids, Medical, Reflection | 2 Comments »
Recently we described how we were kind of at a standstill. We have some tests scheduled for later in January, and a CAT Scan in March. We are attending counseling sessions and so forth, but with no visible signs of the hearing aids working, we are just doing our best to learn about [...]
Filed under: Cochlear Implant, Deaf Culture, Discrimination, Medical | Leave a Comment »
It has been a bit of a struggle over the last week as I have been trying to secure the genetic testing I need to have run. With the results of Drew’s genetic testing showing a mitochondrial abnormality, I need to find out if I have the same abnormality. By knowing this information, I will [...]
Filed under: Genetic Testing, Medical | 1 Comment »
I have found a wonderful group on Yahoo! for parents of children who are deaf and either have been implanted or are pursing implantation. These parents have a wealth of information on cochlear implants, the latest technology, helpful hints for surgery and habilitation. CI Circle has been a great resource for me. The part I [...]
Filed under: Cochlear Implant, Deaf Culture, Discrimination | 1 Comment »
We have made a lot of important decisions. Drew now has hearing aids that are showing no signs of helping him hear even the loudest of noises. I feel like we are standing still, simply waiting for enough time to pass so that he can have implant surgery. We have done and learned so much [...]
Filed under: Cochlear Implant, Hearing aids, Medical | 1 Comment »
